WitrynaDebbie Jorde is the mother in this family of four. She has two children, Heather Madsen and Logan Madsen who both have the rare genetic disorders of primary ciliary dyskinesia, PCD, and Miller syndrome, a rare disorder; it is estimated to affect fewer than 1 in 1 million newborns. At least 30 cases of Miller syndrome have been reported in … WitrynaStories from, "Eight Fingers and Eight Toes: Accepting Life's Challenges" my Debbie Jorde, mother to Heather and Logan Madsen, both born with Miller syndrome...

Artist Logan Madsen has 2 Rare Syndromes & Autism Learns to …

Witryna4 sty 2024 · 6.63K subscribers 3.6K views 6 years ago Heather is overcoming challenges from having rare, Miller syndrome, lung disease, and autism. Every year Heather Madsen, brother … WitrynaLogan and Heather Madsen are 2 of those cases. Miller syndrome affects the f... Miller syndrome is a rare disease documented to affect only 30 people worldwide. huang family office

Living with Rare Miller Syndrome with Heather Madsen - YouTube

Witryna119 9.8K views 8 years ago http://debbiejorde.com/ Each year Heather and Logan Madsen and their mother, Debbie Jorde, give a presentation to the first-year medical … http://awareofangels.org/debbie-heather-logan-miller-syndrome-and/ WitrynaOne causes the rare disease, Miller syndrome, and the other causes a lung disease called primary ciliary dyskinesia (PCD). These two separate diseases affect both Heather and Logan. Later in 2010, I published my book, Eight Fingers and Eight Toes: Accepting Life’s Challenges. In 2015, the news covered Logan's art exhibit, Syndrome Psychology. huang family restaurant menu